Growing up i knew from an early age that Cystic Fibrosis affected our extended family but it wasn’t until a chance meeting with a stranger who in fact turned out to be that family – and became a real friend, that I understood the realities of living with the condition.
Two of Cath’s three boys were diagnosed with CF as children and the whole family have raised money for the CF Trust since.
In 2017 Toby made the brave and difficult choice to elect for a lung transplant to improve his deteriorating quality of life but sadly he died some days later due to complications from the surgery.
I knew our family had a history of CF and panicked at the heel prick test with each of my three boys. Thankfully for us they came back clear. Today drugs have been developed that could dramatically change the lives of families living with CF but for most and for the NHS they are almost completely financially inaccessible.
I have memories of CF being frequently used in probability questions at school
I didn’t expect to witness CF affecting those around me.
If you feel you’re able, please support me to raise money for the Cystic Fibrosis Trust and sponsor my family completing the Great Midlands Fun Run in June.
Thank you for your support.
Cystic fibrosis (CF) is a life-shortening genetic condition that slowly destroys the lungs and digestive system. The Cystic Fibrosis Trust is the only UK-wide charity fighting for a life unlimited, when everyone living with CF can look forward to a long, healthy life. www.cysticfibrosis.org.uk